Princess Ky Background - The cutest blog on the block

Saturday, September 10, 2011

A fly on the wall....

If you happen to know someone FABULOUS who experiences Autism, you might hear a conversation that goes something like this....

Kylie: (shoving your hip) "Thomas book please"

Mommy: "MMmmmmm?" (prompting her to ask appropriately)

Kylie: (This time not shoving and, instead, using her words) "MAY I have Thomas book please?"

Mommy: "Good Manners. Nice asking. WHICH Thomas book?"

Kylie: (not pointing to anything) "THAT one"

Mommy: "WHICH one?"

Kylie: (still not pointing to anything and looking at me like I am dense...) "THIS one"

As you can see, we are a bit conversationally challenged at our house. Mind reading is NOT one of my spiritual gifts.

Thank goodness today Kylie was in a patient and willing to learn mood. Other times when she REALLY wants something it is easy for her to get frustrated when we don't understand or know what she wants by her simple shove of our hip. (This is one of the most common symptoms of PDD-NOS. Shoving vs pointing or using words)

Something that comes naturally to other children, must be taught, rehearsed and role played with children who experience Autism. Patience of the largest quantity is required of caregivers who come in contact with this exceptonal child. MY child.

I don't let just anyone "in" to work with my daughter. Because of this, my daughter has the GREATEST team of therapists and Respite Providers. She is a jewel and she is treasured as such. The people with whom we do wrap around ourselves are loving, caring, educated in Kylie's needs, patient, and are a second family to her.

We are BLESSED!! Kylie is cherished and we wouldn't have it any other way.

With the holidays swiftly approaching, I am curious... how do YOU express or demonstrate appreciation to those in your child's circle of influence? I'd love some good ideas!!

P.S. This post was NOT what I had intended to write when I sat down here... Hmmm... God must have intended it for someone... Hope you enjoyed being a fly on the wall...

P.P.S I still don't know which "Thomas book" Kylie wanted, but don't worry, I'll figure it out. We can use pictures, sign language or good ole' detective work... wish all of life's problems were this "easy".


  1. My son does the "that one" all the time! It's so hard to try and figure out what "that" or "that one" is!

    Last year at Christmas I got our in-home workers gift cards/certificates to their favorite stores/restaurants.

  2. Cassandra, don't you wish you had an endless supply of abundance that you could just shower your providers with special treats? I sure do. It is hard to be on a budget when I want to give back so much!!